We are told that the pneumonia episodes and the possible aspirations that he may or may not be having are causing damage to his lungs. He suggests a CT scan to see how much damage there is. Although there is nothing that can be done to reverse it, it can help come up with a better treatment plan.
We've been advised to administer two nebulizer treatments twice daily in addition to the vest, his inhaler, and the cough assist machine. These treatments take about 30 minutes each time, so an hour a day is now spent just on pulmonary concerns. If he's sick, that time doubles or triples. He's also going to try an inhaled antibiotic and take it as a precaution every other month to try and keep anything at bay.
Hoping this helps improve his breathing and quality of life. We thought he was doing so well because he wasn't needing oxygen anymore, but apparently he's not doing as well as he appears. On a positive note, he has been having a good time at school. And everyone is loving the new house.
|These girls love their brother!|