Author Archives: Leslie

There are many times throughout the day that I wonder what Isaiah is daydreaming about. I know his brain doesn’t work the same way ours do, but I know there are many times where he MUST BE thinking of something. … Continue reading →

The bigger Isaiah gets, the more I become aware of how different from “normal” our lives are going to be. Isaiah had his 18 month check-up last week, and he is up to 25 pounds! He is getting so big, … Continue reading →

We’ve had a lot more family time lately, thanks to our new PCA. We were able to hire someone through the agency. She was the first and only person we interviewed, which made me a little nervous at first, but … Continue reading →

Isaiah has been having some good times lately. His biggest area of improvement lately: SLEEP! I am excited to report that we are now able to swaddle up the little guy and put him in his bed and he will … Continue reading →

Well, Isaiah was still sick for his scheduled surgery, so we moved it back to January 4th. He went in to have ear tubes placed and to have his adenoids removed. While this is a routine procedure for lots of … Continue reading →

Isaiah has a pretty busy schedule this month. We have our weekly physical therapy sessions, speech therapy sessions, and occupational therapy visits. He has seen or is yet to see the neurologist, physical medicine physician, endocrinologist, ENT physician, and his … Continue reading →

At his appointment with his Physical Medicine and Rehabilitation physician a couple of weeks ago, Isaiah was prescribed a medicine called Baclofen for his cerebral palsy.  This is a medicine that he will take three times a day. It can … Continue reading →

I appreciate your sympathy, But you will never understand me. You say you know how I feel, But you just can’t know unless it is real. You haven’t experienced my pain, My baby is different, not the same. “Mama” or … Continue reading →

  I am constantly looking for new activities for Isaiah to do. Since he is not progressing in his abilities like other kids his age, I feel like he gets bored doing the same old things every day. He is … Continue reading →