Category Archives: Uncategorized

While I know that having any child is a lot of work, I sometimes feel like I have two full time jobs trying to work myself and then coordinate all of Isaiah’s appointments and care for him. He added a … Continue reading →

A few months back, we sent Isaiah’s MRI from the day after he was born to The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations (http://www.carterdatabase.org/hpe/). The Carter Centers specialize in HPE research, education, and practice. And they … Continue reading →

Isaiah’s birthday came and went in the blink of an eye. I am sorry it took me so long to get this update done. But I can promise you that I will be updating his blog more frequently now. We … Continue reading →

Over eleven months have gone by? It feels like just yesterday that I came home with my little bundle of joy. Now he’s a pretty big bundle. But just as adorable none the less. I have been busy lately planning … Continue reading →

I can’t believe that summer is over two-thirds of the way over! It seems like it has gone by in the blink of an eye. While we have done so many fun things, there are so many more things I … Continue reading →

Sorry for the long  break in-between posts.  There was the Fourth of July and lots of family time in there. We even had some special visitors from out of town, so Isaiah has been a pretty busy little man. On … Continue reading →

Isaiah has had several appointments lately, so I thought I would share his progress with you. Today he had an appointment with a craniofacial surgeon. They ordered a CT scan and it was determined that he needs a helmet to … Continue reading →

Last weekend we got to meet with another very special couple. They are expecting a little boy within the next month or so who is also diagnosed with semi-lobar HPE. They live a couple of hours away from us, but … Continue reading →

Isaiah is really enjoying the nice weather we have been having. The past couple weekends we were able to go to the cabin and spend a night up there. He has been getting so much fresh air and having lots … Continue reading →

Last week I started a new job working at the hospital. I really liked my old job, and I will miss it a lot, along with all of my coworkers. But my new job allows me to work a second … Continue reading →