We went to the birthday party of said 5 year old last weekend. The whole thing was totally awkward. We were isolated from the group for the most part, because it was extremely hot outside and Isaiah doesn't regulate his body temperature well so he had to be in the shade. We weren't introduced to the parents of the other 5 year olds running around. No one, except the hosts, came up and talked to us. The birthday boy didn't say hi to us, and wasn't told to say hi to us like he was to his other friends (I watched). The older sister of the birthday boy didn't say one word to us. And like I've said, we've known them for years.
Needless to say, we probably won't be attending another birthday party there. And it's made me realize how totally isolated we are from those around us. Even when we make an effort to try and stay close, we will never be totally included in people's lives. You'd like to think that most people are nice, and would try and include us in activities. But they don't. Even in suburbia.
I think it's time to try and reach out, to find more friends nearby that are in like situations with us. Then at least Isaiah won't have to feel like he is weird. These people will actually talk to him (and us) and make us feel included. We went to the birthday party of another HPE kiddo earlier this year, and it was awesome. I'm really hoping our family can make more connections like that. We live and we learn. No one, no matter their situation, fits in everywhere they go. Our lives are short, and we should choose to surround ourselves with people who care about us as much as we care about them. <3
Note: I am not looking for sympathy by posting this. Just sharing real life experiences for those who are curious to know what it's like to walk in our shoes. I definitely try to balance the good with the bad so our story is not one-sided.
|BFFs for life! |
Belle tries to make her own wheelchair out of her baby doll stroller so she can watch TV just like her big brother.