Isaiah came home from the hospital on Saturday. Since then, mom and dad have taken on the role of nurse to him. It really is a full time job. I feel like we weren't properly prepared proir to his surgery for all of the needs he would have afterward.
First of all, he needs a special wheelchair that can recline (his could tilt back, but didn't recline) because he can never be bent more than 70 degrees up. It can't ride in his spot in the van, and in order to transport him home, and anywhere, he has to wear a special vest and be strapped flat in the back seat. Because our van is modified, we have no middle seats, so we can't bring both kids anywhere in the same vehicle until he gets back in his regular chair.
He has a normal bed, so we were trying to make him comfortable with pillows. This was nearly impossible, so we had to get a hospital bed to rent. I wish we would have had this right away, so we didn't struggle to make him comfortable for the first two days. His bed is parked in the living room and it goes up and down, plus the head and feet go up and down so changing positions is easier.
Changing him is a struggle. He has to be rolled up and onto his side, back and forth to change what is underneath him. He was swollen bad from surgery and didn't fit into his diapers. Since he was already in the largest size of over the counter diapers, we had to buy some men's Depends that we cut the sides and put on him. I also bought some pads to put under him to catch any leaks, they were meant for puppies but they work great. He hates being changed because it hurts him. He cries and I feel so bad. But this is slowly getting better.
Because he can't sit up, his secretions keep getting stuck in thr back of his throat. He doesn't swallow well, so this causes them to thicken up. He coughs a lot and gags on it. If I don't suction it out about every 10 minutes, he throws up. He also needs the cough assist machine frequently to help keep him loose. Thank goodness we already had these machines, or we would really be struggling. Plus he uses his nebulizer as needed to try and keep his lungs healthy and clear as well.
And then there is Isabelle. She tends to get pretty jealous of her brother getting attention and pretty much fusses about half the time we aren't holding her. But she also has her good moments when she can be by Isaiah. She loves him so much and tries to cheer him up. They make each other smile. It is so cute to see how their love is developing. I think she will be an understanding and helpful sibling as she grows up.
So, we pretty much won't be venturing out of the house for the next few weeks, besides wheeling Mr. Isaiah outside to get some fresh air. I am pretty much unable to transfer him myself so I have to wait each day until John is home. As hard as it is, it is only temporary. And we already have over a week done. I just pray he heals well so we can be done sooner rather than later.