Tuesday, March 24, 2015
Isaiah is signed up for baseball, which will start in May. He will be playing in the Miracle League with other three to eight year olds. The Miracle League is specifically for those with disabilities. John and I are super excited to go and see him play. John will be his buddy, that helps him to bat and run around the bases and catch balls. Isabelle and I will be cheering them on from the stands. Below is a picture of John and Isaiah at the special field.
We also have plans to get out camping a few times this year, to spend a lot of time at the lake, and to enjoy our time together as much as possible. We have a wedding to look forward to, lots of walks and runs, and time with family and friends. Now if it would just warm up again...
Wednesday, February 25, 2015
Isabelle Grace arrived last week. She was 8 lbs 6 oz and 20 1/2 inches long. Isaiah came to the hospital to meet her, and he was a proud big brother.
We are adjusting to our new life at home. Isaiah is getting used to the sounds a new baby makes. She kind of startles him sometimes, but overall he is pretty relaxed. He smiles at her and keeps tabs on her out of the corner of his eye. Its pretty cute.
Monday, January 12, 2015
We've been extra busy lately working on our house and getting ready for the arrival of Isaiah's little sister next month. We've been shuffling around in the house a lot. John re-finished our basement to turn it into our master bedroom, and it looks amazing. I am so lucky to have such a handy husband. Then we turned the large upstairs bedroom into a nice big room for Isaiah. He has tons of room for all his equipment and supplies, and it's decorated just for him. He got a nice mat to do his therapy and stretches on, and he even has a couch in there for his guests. Baby will have the smaller bedroom upstairs, and we painted and are re-decorating that as well.
Isaiah has been working on feeding at his speech therapy appointments. He seems really motivated now to try new things and to eat, especially when he sees us eating. As you know, his swallowing is weak, so he still has trouble with gagging and coughing while he is eating. But it's not discouraging him, and he is getting stronger every day. Even if it's only a little tiny bit of his nutrition, I'm happy to try whatever we can to help him. He is doing so well and getting so much joy out of it.
Tuesday, November 25, 2014
Isaiah had struggled with his muscle tone about three months after he had his botox injections in his arms and legs. His startling picked up and he seemed like he was more uncomfortable than normal. His doctor determined that it was because the botox was wearing off, so he had more injections. They lightly sedate him so it doesn't hurt, and the sedation wears off quickly. The injections helped him greatly and he is back to his happy comfortable self. We know these will need to be repeated about every four months, but the procedure is easy and the results are great.
Having cerebral palsy puts kids at a high for hip dysplasia. Unfortunately, Isaiah's last x-rays showed that this has started to develop. They've been keeping an eye on it for a long time, but it is finally becoming an issue. He has a follow-up appointment in three months. It is likely that he will need surgical intervention, which requires a hospital admission and then a cast on his lower body for about six weeks.
This breaks my heart. The thought of putting him through surgery and him sitting in a cast for six weeks makes me so sad. But in researching the issue, I know it will be good for him in the long run. Studies show that kids who have surgery earlier have better outcomes later in life. However, the surgery is not a permanent solution and it may need to be repeated in three to four years. It is something they will need to monitor and treat for the rest of his life.
I do know Isaiah is strong, and that he recovered well from all of his procedures in the past, so I know he will make it through whatever he needs to do, and he will probably have a smile on his face. As his parents, John and I will do whatever it takes to maintain his quality of life and keep him healthy, happy, and comfortable. I love that little sweetheart more than anything in this world.
Friday, October 3, 2014
John and I went to the maternal fetal medicine clinic for a level 2 ultrasound today. We heard nothing but good news. Our baby looks healthy and there is nothing to worry about. Not that we would love her any less if there was anything wrong. We decided long before we went in that the ultrasound is the only test we would do, and we were prepared for any outcome, good, bad, or in-between. Every baby is a blessing, and we are all looking forward to adding a new addition to our family.
Tuesday, September 30, 2014
Thursday, September 4, 2014
Isaiah goes to school at the early childhood learning center in our school district. He goes to a small classroom with five other children in it. They all have varying disabilities. There are as many adults in the classroom as there are kids, and they do all kinds of fun activities and therapies with him. He goes three days a week for two and a half hours.
Isaiah even gets to ride the bus to and from school. He loves the bus ride so much. He gets to ride up in the lift an look out the windows. It is probably one of his favorite things about going to school. There are a few kids on the bus both ways, a driver, and an adult who helps them out.
For the first couple of weeks, Isaiah's PCA gets to go with him. It makes us feel a lot better, because we know she will make sure they know how to take care of him and she can answer any questions they may have, both on the bus and at school. She says that he has a lot of fun and enjoys being with the other kids his age.
Friday, July 11, 2014
Tuesday, July 8, 2014
One of our favorites is going to the zoo. Isaiah's face lights up when he gets to see animals up close. He really loves the big aquarium, the bears, and the monkeys. The first time we walked away from the monkeys I told him to say goodbye and he started pouting and had a tear in his eye. What a goof!
Isaiah also enjoys spending time in the water. He's always loved his baths. We were recently able to get in the pool at Grandma's house and he thought that was pretty awesome. I found a pool therapy float for him that goes around his neck to keep his head above water while he can freely move his limbs. He didn't mind the float, but it was a little big for him and therefore couldn't be trusted to hold him up on it's own. Still helpful though. We'll have to try it again soon. We would have tried the lake last weekend, but it was chilly and Isaiah doesn't appreciate being cold and wet.
Isaiah loves to ride Grandpa's four-wheeler. As soon as he hears it start up, his legs go flying and he screams and giggles. We have no choice but to take him for a ride. But don't worry, we hold on tight, don't go far, and drive really slow. He thinks it is one of the greatest things on earth. He doesn't stop smiling and laughing the whole ride.
Isaiah may not be able to do as many things as other kids his age, but his joy for life and true happiness make up for any physical disabilities that he has. We are so blessed to be Isaiah's parents and we thank God for this special blessing every day of our lives.
Wednesday, June 4, 2014
We decided to take a little break from therapy for the summer. We have learned a lot of things that we can work on at home, and it is nice to not have to run to multiple appointments every week. He hasn't made too much progress lately, so we hope that talking a little break and working on what we know for a while will help him later on.